Belit has significantly contributed in the development of new tools in order to aid persons affected with ALS and MS under the auspices of the EU-funded BRAINTEASER project. In a step to drive better health and care services for these different players in the health system, the project has conceived two tools: a web-based dashboard for health professionals and mobile-based app for patients and caregivers. Both tools include comprehensive content, varying according to the needs of those individuals and the disease type. In terms of the dashboard, it hosts clinical tools for healthcare professionals to use, especially for patient enrolment and continual follow-up. The tools collect data on patients’ health status and daily habits and support professionals via alerts and notifications on changes. Clinicians can view the data reported by patients on their mobile and suggest new activities or schedule visits. The patient profile is semi-anonymous, so only the email address is available. A set of credentials (username and password) provide the authentication code (sent by email) for clinicians to manually insert into the dashboard. The boosted security aims to protect patient data and reassure that information provided will be stored safely. Apart from this leading feature, the dashboard has undergone several iterations to better adapt to clinicians’ needs. For example, it allows clinicians to report, if known, various diagnostic and personal patient data. The dashboard also does oblige clinicians to enter all the device data. In terms of the mobile-based app, it serves patients and caregivers to help them report symptoms, complete questionnaires, receive notifications, read educational content/tips and partake in recommended activities that promote overall well-being. Each interaction is personalised to the patient based on either the symptoms described or the score reported (per functional scales ALSFRS-R and EDSS in ALS and MS cases, respectively). This means that patients and caregivers can expect different types of materials and activities relevant to their unique needs, helping to improve the health experience. More details on tools developed can be found in this BRAINTEASER Project press release. These novel tools will be presented at the end of February 2023 at the BRAINTEASER workshop in Padua.
Neurology app questionnaire
Mobile app interface – detail